We spent the weekend at the hospital. Friday afternoon we headed up there for the 5:30 and 8:30 visit. She seemed more alert and all her numbers were looking better. She was asking what had happend because she didnt remember having to be cut open again. She is always asking what day it is and the time. She wrote on the marker board that she planned to be out by Ainslee (her granddaughters 1st birthday) which is in October.
She had to start dialysis for her kidneys earlier in the week to get out some of the fluid. She still has the breathing tube in and you can tell it is really starting to bother her. Saturday afternoon when we went in so seemed to be in a good bit of pain and very confused. The doctors were having to clean out her mouth and move around the tube. It is so hard to see her in pain. I am trying to be strong for Riley but I am so emotional and it is hard to hold it in! Saturday night she seemed more calm and was resting. Sunday morning when we went in they had her restrained to the bed because she would wake up during the night confused and start trying to pull all the tubes out of her mouth and nose. So it has to be really frustrating for her because now she cant talk and she is tied to a bed! They kept talking about taking the tube out today but they said they wanted to build her up to that. She breathed on her own (still with the tube in) for 8 hours today and was only able to do 2 hours yesterday! The doctors came out and said she is off of all the meds right now but insulin and things seem to be working fine right now! Please keep praying for her and our family. This has been an emotional rollercoaster but I know God is in control and will take care of her!